Today has been a day of progress!
Eva produced three wet diapers completely on her own today, and we were finally able to help her have a significant bowel movement. She has got to feel better with all of that stuff out!
Eva has also spent several hours this afternoon completely off of oxygen. Such an amazing milestone! As the evening is coming on, she may require a low level of oxygen to help her sleep comfortably. This would not be a setback, and we anticipate being completely off of oxygen for good soon.
We have also been able to continue weaning down on two of Eva’s seizure meds without adverse effects. This is a huge win! The EEG has shown us that she continues to have seizures we cannot physically see, but today Eva enjoyed quite a bit of awake time with little seizure activity noted by Mom. Our goal is to reach a good balance between seizure control and alertness to achieve her best quality of life.
Your love and support and prayers mean so much to our family! Thank you!
Armanda Johnson says:
That is so great to hear that she is doing better, please let Jay and I know if we can do anything, we love you guys and are praying for Eva and the whole family!
Blessings, Armanda
Lisa Roitsch says:
Love you and continuing to pray! Lisa R.
Auntie Jeannie says:
Praying for all of you and sending all the love your hearts can hold. Eva couldn’t have asked for a better family, and we know you’ll always do the best you possibly can to take care of her. Extra hugs & kisses, Blessings, love & prayers, Jeannie & David