Today has had its ups and downs. Evangeline did not have a great night as she was not tolerating lower levels of oxygen. After the oxygen levels were increased early this morning, she was able to rest comfortably again. The doctors indicated that they try to be fairly aggressive with decreasing the oxygen so this was not totally unexpected. The neurology team consulted with Mom and Dad this morning. It was suggested that Evangeline get on an EEG to take a look at how her brainwave patterns have changed these last few months. This was welcome news since we had determined that we would like an EEG. This afternoon shortly after Evangeline was hooked up to the EEG, the neurologist came for a visit. He indicated that Evangeline was experiencing near constant seizure activity. While this was not surprising, it was troubling. However, the neurological team was encouraged that they had, at the least, discovered a reason for what was presenting clinically. Therefore, tonight Evangeline will start a test dosage of a drug that we all are hopeful will improve the neurological activity.
One specific prayer request tonight – please pray for both Mom and Evangeline to get some good rest.
Thank you for your continued prayers. Our family is deeply appreciative of your care for us!!