Update 2021-09-30 8:00 PM

A couple weeks ago I contemplated writing an update just to let you all know that Evangeline was improving after her last hospital stay.  Her seizure activity seemed to be reduced due to the increase programed into her VNS device.  Well…as we have come to expect from Evangeline, things can change quickly.

On Monday she experienced some unusual fever activity – one side of her body was registering a significantly higher temperature than the other.  After much debate and consideration about heading to the ER, we decided to wait just a little while to see if we could get her fever to come down.  Gradually it did so.  Throughout the day she seemed to improve ever so slowly.  Tuesday morning she awoke without a fever.

Evangeline had been scheduled for a doctor’s appointment with lab work on Monday.  However, due the circumstances referenced above, we had to cancel it.  Since Eva was feeling better on Tuesday, Mom re-scheduled the lab work for Wednesday.  Therefore, yesterday afternoon she had blood drawn for analysis.  Then, just before 5 pm, the doctor’s office called to tell us that Evangeline had some concerning numbers for which they had no explanation.  They encouraged us to take her to the ER right away.  

Mom and Dad arrived at the hospital with Evangeline just after 7 pm.  The medical team spent all night assessing her condition and waiting to be admitted to the hospital.  The nurses had a terrible time getting an IV placed – it took 3 different nurses and an ultrasound device to finally get it completed!  Sometime during that process Evangeline fell asleep and slept soundly until she was moved to a room in the hospital between 4 and 5 am.  Needless to say Mom and Dad were wiped out by then!

Today has been a good day.  Evangeline seems to be doing well and the doctors are just trying to figure out what the issue may be.  The problem seems to be that she is having an issue absorbing the nutrients.   There may be an imbalance of good vs. bad bacteria in her gut – possibly as a result of the administration of antibiotics during her last stay in the hospital.  There may also be some drug interactions that may be causing some problems. 

Please pray that the doctors can figure out the cause of these anomalies.  We are entirely unsure how long this hospital stay will last so prayer for a quick resolution is appreciated as well!