Today the doctors put Evangeline to the test – they let her breathe on her own for about an hour. She did very well! This is a positive sign! Everything seems to be pointed in the right direction for now. Thank you for your prayers of healing for our precious little girl! We so appreciate your support.
Month: December 2022
Today we continued to see Evangeline take baby steps in the right direction. She did take some breaths on her own today – yeah!! That is positive because when a person is on a ventilator they can lose the ability and strength to breathe themselves. Evangeline even responded to mom saying her name today. Amazing since that is not even a regular occurrence in every day life! The doctors did discover that she has a Strep A infection along with a secondary infection causing a UTI. She is already on antibiotics, but as soon as they determine the specific bacteria, they will target the antibiotics to fight those infections. Eva has been hooked up to an EEG for a day or so and is having some seizures but nothing remarkable for her. In fact, the EEG technicians monitoring her even asked if she could get off of monitoring because she was the most boring EEG they were watching. This is a first! Therefore, the EEG leads were removed from her head helping protect her skin from irritation. Finally, Evangeline has had some periods of alertness today. All of the signs seem to continue to be positive.
Thank you for your continued prayers and support! It is wonderful to know that so many people are lifting us up in our time of need.
Evangeline has been making baby steps in the right direction today. She was removed from a paralytic drug this morning in order for the doctor’s to see how well she tolerated being able to move around a little. So far so good. Her body has begun to slowly clear the obstructions to breathing. However, she still has a long way to go before we will know if she will be able to recover. Each 24 hours that passes will give us more clues to this process.
We are immensely grateful for the outpouring of love and support from all of you who are praying for her and us. May the Lord return to you the blessings you are providing to our family.
Please pray that she will continue to make more baby steps in the right direction. Also, we would appreciate prayer for Mom and Dad to get some rest tonight. Thank you!
Unfortunately, we had to take Evangeline to the ER late yesterday afternoon. She has been ill with sinus congestion for about a week now and rapidly declined today. When we arrived a whole team of doctors and nurses immediately jumped into action tending to her. She was far worse than was evident to us. The doctors were very concerned about her breathing. “This may not be survivable” is not something you want to hear about your child. Ultimately, the choice was to intubate her or let her pass. We were not prepared to lose her immediately and felt that intubation was important to give us time to think and potentially identify a cause for infection.
It is possible that much of this is neurological, and her brain is not able to help her other biological processes fight it off. While this situation seems dire, we are confident that the Lord is in control. As I prayed in the ER, I acknowledged that Evangeline is not our child. We are only her stewards while she lives here on earth. I am exceedingly grateful for her impact on our family.
Overnight she has remained stable through sedation. The doctors are testing if they can determine any underlying cause of illness. The results of a CT scan before moving to PICU last evening showed additional brain atrophy from her last MRI. While this is not good it is not unexpected given her condition.
Please pray for healing of our daughter and pray for wisdom as we make decisions and trust Him through this process. We appreciate everyone who has reached out to us!